Number of hemophilia affected people revealed
By Sara Israfilbayova
As many as 1,554 people diseased with hemophilia have been registered in Azerbaijan.
The number of patients aged between 1 to 5 years is 113, and those aged between 5 to 15 years is 222, said Elmira Gadimova, the Head of the Scientific-Practical Center of Hemophilia Elmira Gadimova at an event dedicated to the World Hemophilia Day.
World Hemophilia Day is an international observance held annually on April 17 by the World Federation of Hemophilia (WFH).
Hemophilia is a mostly inherited genetic disorder that impairs the body's ability to make blood clots, a process needed to stop bleeding. This results in people bleeding longer after an injury, easy bruising, and an increased risk of bleeding inside joints or the brain.
The head of the Center noted that the number of the patients with hemophilia is higher in Baku, Sumgayit and the central lowland districts. According to her, 738 patients with hemophilia are registered in Baku, while 76 are registered in Sumgayit.
Gadimova noted that the medicines bought for patients suffering from hemophilia have increased twice for the last ten years.
Men usually suffer from this disease, women act as carriers of hemophilia and can give birth to sick sons or daughters-carriers.
The worldwide incidence of hemophilia is not well known, but estimated at more than 400,000 people. Approximately 75 percent of people with hemophilia around the world still receive inadequate treatment or have no access to treatment.
The most famous bearer of hemophilia in history was the English
Queen Victoria. Queen Victoria, through two of her five daughters
(Princess Alice and Princess Beatrice), passed the mutation to
various royal houses across the continent, including the royal
families of Spain, Germany and Russia. Victoria's youngest son,
Leopold, was affected by the blood-clotting disease. He died from
blood loss after he slipped and fell.
Alexei Nikolaevich, the youngest child and only son of Emperor
Nicholas II and Empress Alexandra Feodorovna (Princess Alice’s
daughter), was born with hemophilia.
For this reason, hemophilia was once popularly called "the royal disease".
With a sufficient number of medicines, a patient with hemophilia can lead a full-fledged life: to study, work, create a family, that is, to be a full member of society and to benefit his country. And although the diagnosis of "hemophilia" is no longer a death sentence by the efforts of scientists, doctors, "World Health Organization", "World Federation of Hemophilia", "Society of Hemophilia", this is no reason to rest on laurels, because this disease is not defeated completely.
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